they are upset with me because,and this is tricky and i need to try to explain it correctly - that i didnt say enough negative things at the time, but made my remarks in the exit questionnaire and in my post here. the decision is mostly coming from the study doctor. (i'm blanking on his name right now but the guy with the turban.)
i have told them that i want to appeal this decision. they don't have a formal process, but informally it's on.
i have asked to have the doctor call me. i will take it up with the irb if i need to.
their perspective is that i didnt give enough feedback right away. and that's kind of a he said she said sort of deal; there's no record and because of confidentiality i can't contact the other patients who were witnesses. i think i was clear at the time that it had been very unpleasant; they disagree.
but my perspective is that what i'm really being punished for is that later, when i was less in shock, that i was articulate in my feedback, first in my written comments on their exit questionnaire,and then in my post here, which they've read. that if i had just shut up and took it, like most other lab rats do, i wouldn't be in this situation of having my income get cut in half by getting banned from the place i go the most. they wouldn't have known if i'd just kept my head down and tried not to be noticed, like the majority of subjects do.
although they don't understand what they are doing to be censorship and retaliation for my having been truthful, that's what is actually happening. and i find it ethically troubling.
i am going to try to work this out, but i'm not especially hopeful.
first update: a little bird has told me that i'm not the only person to have been banned as a result of leaving feedback on a comment card; if you go to abbvie for your own safety it might be better not to leave written feedback, or do so in a way that can't be traced back to you. it's unfortunate to have to give this kind of advice, but that seems to be the situation.
Read more: http://jalr.proboards.com/thread/749/banned-abbvie?page=1#ixzz3YYo5Lt5h
Post by vark on 7 hours ago
based on a phone call right now, it seems they have me on a do not recruit list. no explanation.
abbvie has been the main place i've been going for the past couple of years, so this is going to cut into my income substantially. |
banned at abbvie 2 hours ago
Post by travelingrat on 2 hours ago
that is awful news. is there anyone you know there whom you can contact to learn the reason .... or maybe contact the IRB? i wonder if this was some sort of computer error; it really sounds weird.
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I am at abbvie doing a 6 day $2K study. So that's $330/day, right, sounds good? Don't do it. They want 10 more people for January. Don't do it.
The hour + 15 minutes it took them to get the tube in my nose yesterday was the worst experience I'd had in 7 years of lab ratting.
Excruciating pain, and gagging, and the creepy feeling of things sliding in your throat and nose. One guy was smart and backed out and got two days alternate pay. One guy, they couldn't tube him. Of the 4 of us who got tubed, 3 say never again, and the 4th guy just isn't talking.
Wait till they have a decent study, february maybe. This one was not advertised, I got it by calling in and asking. I can confirm that you no longer
have to eat all the food on non-pk days. The written rules havent changed, but the actual practice has changed.
while this post is under abbvie, i'd say if you get offered a tube-in-nose study anywhere, don't do it.
edit: the second time wasn't nearly as bad.
Read more: http://jalr.proboards.com/thread/598/update-new-changes-worse#ixzz3YYqQK448
Read more: http://jalr.proboards.com/thread/749/banned-abbvie?page=1#ixzz3YYoHUJ9x
Verified Clinical Trials is dedicated to reducing protocol violations in clinical trials while improving clinical trial safety and data quality. Verified Clinical Trials will stop dual enrollment in clinical trials and prevent professional research subjects from enrolling in to the trials you conduct.
John from medpace alerted me to this language at vct's website. highly disturbing. he' going after an industry and those of us who use jalr.org, which is contractually tied up with study scavenger which is part of vct.
